Children with SMA in Ukraine πŸ‡ΊπŸ‡¦

😭 Spinal muscular atrophy (SMA) is genetic dicease that is the most common genetic cause of infant death

SMA often leads to death caused by the failure of the respiratory muscles

Learn more from wikipedia


Let us help two Ukrainian children with SMA

Picture of Matvey Picture of MArianna

Matvii, 11 months old, SMA1

Marianna, 3 years old, SMA2

I am breathing very weakly, often have hard pneumonia and my state is getting worst very quickly 😒 I have already lost the ability to swallow 😭
I need just one injecrtion of ZOLGENSMA to become healthy ✨ Without ZOLGENSMA I will never learn to sit and walk and probably will not survive the age of two years 😭
Please, help me to raise funds for ZOLGENSMA, this would safe my life ❀️
My mother Lena and my father Mykyta love me and do anything to save me πŸ‘¨β€πŸ‘©β€πŸ‘¦ Please, help more people to get to know about me πŸ§šβ€β™‚οΈ

My legs do not walk. My muscle tone decreases every day 😭 I need only one injection of ZOLGENSMA! This injection costs 2.3 million dollars (64 million grivnas). Only one injection would give me not just helthy legs but the most important - my life ❀️
I need complex supporting terapy and painful injections 😒 Time works against me, I need the ZOLGENSMA injection as soon as possible, because the clinics in which I have the bill for treatment, deals only with children with the weihgt less than 21 kg. I need your help and support very much! πŸ™ You can help me both financially and by spreading information! ✨


πŸ™ Be kind and supportive
Made by Tetiana Ivashyna